But this week one thing feels positive to me. Amid sinus infections, hours up with a child throwing up, heart wrenching headlines, expensive errors, impending IEPs, a thousand variables in summer planning, work stress, concern for friends, and hurt feelings, one thing has me energized, motivated, dare I say optimistic? No, the yoga class my amazing friend talked me into (thanks, S) was simply divine, and I still can't believe I managed to go, but that's not it. No, getting back to healthier eating and seeing hints of the benefits feels good, but that's not it. No, I am fascinated by the B vitamin information I've learned, but that's not it. No, it's amazing that the rooster might get to attend camp for free for two weeks as as special needs son of a Jewish mom, but that's not it. (By now you are thinking that with all this manna I should really be ashamed of myself for griping.)
This collaborative book idea?
Oh, yeah. I love it. Everyone of you who commented last time? Or emailed me? Or FB shouted out? Let's do it. P, of course I'd love your help! There are seven of us, I believe, who feel like contributing something, whether it's writing or brainstorming or proofing. As a July baby, I think seven is a powerful number, and I'm ready to roll up my sleeves and plan. I can create a wiki so we have a shared work space for interested parties? We could meet in a video conference? Or someone could just tell me how to start? Because I'm ready to start. Someone just tell me how. This idea is the only thing that tastes like hearty hope in my greedy mouth, and I'm practically drooling for more.
Someone give me some homework? I'll do it, I swear.
Or tell me if we're on the same page? My "vision" or "mission" or "seed" or "concept" is this:
Create a book for parents facing a new diagnosis that tells the story of so many of our experiences: We were scared, we blogged, we connected, it helped us, and now we can share what we did/learned/tried as we encourage you to add your voice and find your own unique way.
The "chapters" or topics I keep contemplating:
- Diagnosis experiences
- Blogging/writing/self expression
- Family Life / Marriage / Divorce / Siblings / Extended Family
- IEPs / School
- Therapies / Medication
- Autism conflicts/ philosophies/the big why?
- Birthday Parties
- Having a sense of humor
Some of the big questions in my mind:
- Is it simply a putting together of posted blogs? Or is there a narrative throughline? I really think I envision a narrative organizer...
- What work serves as a good model?
- How do the comments fit into the story? Is there an interesting way to focus on them?
- How do we work collaboratively?
- all that legalish, businesslike stuff... so NOT my forte