I got an email, friend-of-a-friend style, asking for my advice. I don't have the answers, but I know YOU might...
Can you help my new friend, whose girl has Moebius Syndrome?
"I wonder if you have run across anything regarding enteral nutrition. My daughter is tube fed on Pediasure and it's gluten free/lactose free, but I think it has casein.
I was also considering testing her for GI issues and didn't know where to start a discussion with a Dr about it.
Any advice you might have would be welcome."
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Two kids, two full time careers - lots of people do it gracefully, but for me it's a challenge, particularly as I struggle with my boy, the rooster, and his "constellation" of health and developmental issues. Medicine so far fails to cure what ails us, so I'm trying a self-prescribed intensive dose of blogging to see if that does the trick.
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